Wednesday, August 13, 2008

Sweet Little Reese

We've been trying for months to get down to Pasadena to visit our friends the Kostjuk's and their sweet little baby girl Reese. Reese has Emanuel Syndrome, a genetic condition where she has 47 chromosomes instead of the 46 that a human should have. That 47th is a combination of the 11th and 22nd so it makes her extremely mentally and physically handicapped. On top of that, Reese was born with a diaphragmatic hernia, essentially pushing a lot of her vital organs up and squishing them together, specifically her left lung. I'm no doctor, but here's a good post from their site on what all that means. Reese has been doing well as of late, kicking a fever for one, and we were able to see her on what Ashley and Todd called, "One of her good days." Todd was awesome and came out to see us and Reese during his lunch hour. It's been such a blessing to watch and read how the Kostjuk's have been coping with the situation their baby girl has been in for these past 7 months. What an example of faith-living and God-fearing people they are. One can only hope that being put in a similar situation that we could trust in the Lord and His sovereign plan half as much as they have. If you have time, read through some of their posts over the last 7 months. Their story and faith will inspire you.

Huntington Hospital in Pasadena

Katy in the outdoor hallway

Reese getting place in her seat

Reese Renee Kostjuk

Tiny little feet


Rob, Katy and Reese

Ashley Kostjuk, Katy and Reese

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