Showing posts with label faith. Show all posts
Showing posts with label faith. Show all posts

Sunday, July 27, 2014

remember

My cousin Amanda called me the other night out of the blue, as she had passed by her fridge and saw our birth announcement on it.  She told me she was thinking of us as she is giving birth to her second son tomorrow.  It reminded us there are many of you still regularly thinking of us and our trial which was now over nine months ago.  It also caused us to reflect, once again for the ten billionth time, on how much we miss our son.  Amanda chided me for not having any recent pictures of the boys and I admit, I am without excuse.  I'm sorry we don't post more, or any, depending on your viewpoint.  We're lucky to get our phones out quick enough to even grab a quick pic of something cute they're doing or some new milestone.  I'd like to say I'll be better about it, but that would be an empty promise.  We post when we can which is obviously few and far between.  The night Amanda called, we were playing on the floor of their bedroom with them and listening to my iPhone on shuffle when a song by Chris Rice came on entitled "Untitled Hymn (Come to Jesus)."  That night it held a deeper meaning and after a few days and many tears, I was able to put a photo montage together of the life and death of Joshua.  I feel like I shouldn't have to say it after so many other posts where the disclaimer was necessary, but I will anyway. Don't watch this video if you're concerned over people seeing you cry or if you're in an emotionally fragile state, as it will most likely evoke feelings you don't want to come out. With that being said, please enjoy a glimpse into our youngest son's life we aren't always able to properly describe, but feel this video does a small bit of justice.


Sunday, February 23, 2014

homecoming

I was browsing for some examples today of multiple birth announcements and came across this blog called Perfectly Peyton.  It's this woman, Stacey Skrysak, a tv news anchor in Illinois, who gave birth to triplets at 22 weeks 6 days. Shortly after giving birth, one of her triplets, Abigail, passed away. A month and a half later, her son Parker, also one of the triplets, passed away too. After 116 days in the NICU, they were able to bring their daughter Peyton home. I told Katy about this inspiring family and how Stacey had been blogging fairly consistently throughout. I expressed guilt at not having kept up our blog for the numerous people praying and thinking about us during our experience. Katy reminded me of my post regarding the NICU staff and how she had posted just over a month ago about how the boys were doing. I shrugged both of those off in light of Stacey's ability to continue posting throughout, what seems to us, overwhelming loss. So for hibernating, I do apologize.

That's what this post is going to be. Strictly an update. If I have the emotional energy, I may try and tackle a thoughtful post afterward. Without further ado, here's what's been going on since November 10th, the date of Katy's last post.

On November 13th, Samuel came home. All of us, especially Nick, could not have been more excited




 Even Lucy got in on the action. She was unsure, but at least she didn't shun him like she did to Nick for the first three years of his life. 


It was a long first night, but so, so, worth it. For the next nine days though, we struggled with spending too much time at home taking care of ol' Sam while not spending enough time at the hospital with David. We found ourselves splitting our time with David, rarely going as an entire family, trying to balance raising Nick and Samuel at home and getting quality time with David. Wrestling with guilt over getting to know Samuel so well at home and missing out on the same experience with David. We were faked out two days after Samuel was discharged when the NICU staff removed his o2 nasal cannula. 


They ran him through a car seat check, sitting him buckled up in his car seat and monitoring his levels for two hours. He passed the test with flying colors! That night however, he "de-sat'd" and was put back on o2 for a few more days. That was a tough one to swallow, especially since the 17th was their one month mark and they weren't living in the same place.


Soon it was over though and on November 22nd, our family was within our four walls, united at last. 



Having both of the boys home before Thanksgiving was amazing


We obviously can't say enough about the staff at Marian. They were amazing and will always have a special place in our hearts. That being said, we didn't realize how much of a toll it was taking on us emotionally to walk by the place where all of our triplets lived and where one of them died. We walked by the exact room where Joshua entered into heaven sometimes three times a day. We passed the operating room where we saw them come into this world. We sat for hours a few feet from where we saw Joshua failing to breathe. We daily saw the faces of the loving people who cared for Joshua in his few hours. These situations and associations were unavoidable and we wouldn't change what we went through by walking down those halls every day for 37 days. That number seems so small when its written out. Especially in light of the Skrysak's time in the NICU and especially our friends the Kostjuk's. But to us, it felt like a lifetime.

Well, life got in the way and although this post began shortly after Thanksgiving, it's concluding in January. 

The boys are amazing. We celebrated Christmas with both sides of the family, dedicated them at church this past Sunday with family and friends, and they're both double their birth weight now! They smile regularly, poop disgustingly, cry incessantly, and we love them unconditionally. I'll try and get Katy to post some pictures from the past month in her own post soon. Thank you for your prayers during our hiatus. Sorry it took so long. Taking care of two babies takes up a lot of time ;) 

Sunday, November 10, 2013

perfect - 11/10/13 - 3w3d

I started to write a post that included some of my thoughts on my grief and sorrow over our loss of Joshua, but realized I had so much to say and it was so scattered that it needed some fine tuning. Instead, this is merely an update on how our boys came into this world and how they are now. 

On a day three weeks ago, I was not only blessed to meet little Josh, but I also got to meet his two womb-mates. They are perfect and while they have had to spend their days in the NICU, I am very excited for the day they will get to come home. 

At 11:04 am, on October 17, 2013, David Adam entered this world.


I heard him scream right away and then he was taken into a small room off of the O.R. called the resuscitation room. Rob assured me that he was ok just in need of some respiratory support. After surgery, the wonderful staff wheeled my bed into the NICU where I got to see my babies for the first time and at that time David was just getting oxygen thorough a nasal cannula.



Later that day he showed signs that he needed even more help breathing so he was intubated.


The nurse that night had her work cut out for her because she had the very unpleasant job of keeping me in bed to recover and away from the NICU and my babies. Rob spent the night trying to assure me that he would make sure I could see my babies first thing in the morning. So the next day when I finally got to go, I was very disappointed to hear that I could not hold David, only touch his head because he was too sensitive to touch. All we could do was standby and hope for the day we would be able to hold him. While I was being discharged, Rob sent me this picture:


He had been extubated! He was now on a cpap which looks brutal but in reality is just a cone that covers the nose.

That day was my last day staying in the hospital and we would start traveling to and from the hospital to see our precious babies. It is now three weeks later and David has made vast improvements. He went from the cpap to just a nasal cannula and from a central feeding line that went through his umbilical cord and allowed for a small blood transfusion, to an IV, down to nothing. He also went from a closed isolette where we could only stick our hands through to touch him to a regular open air crib where we get to hold him any time that we want.

This is my beautiful David today:


 At 11:06 am, on October 17, 2013, Samuel Abraham came into this world.


He did not cry right away but after some vigorous rubbing he perked up and let out one of the most wonderful sounds. They were able to keep Samuel in the O.R. as he did not need much lung support so Rob got to take pictures with him.


I was able to meet him before he was moved to the NICU.


After being taken into the NICU where I got to look at David, the staff moved me over by Samuel's isolette and I held him for the first time.


When we left the hospital, Samuel was receiving oxygen through a nasal cannula.   


By the next week he was taken off the oxygen, had his IV removed, and moved from the temperature controlled isolette to an open air crib. He is currently staying in the NICU only until he can take all of his feedings by mouth and not through the feeding tube. Currently this is what our little Sam looks like:

The boys are all perfect. They were on the day they were born...


And they are now...


They don't always get to be in the same crib, but we snuck them in to get a shot of three of our boys.

We'll try and post soon about our memorial service and how we've been dealing with our loss, each in our own posts but in the mean time, thanks again for all of your continued prayers and thoughts. They are definitely helping us to keep going.

Thursday, October 17, 2013

fear - 10/17/13 - 33w0d

     

At 10:30 am PST Katy will be having a c-section. We are just over 8 hours away from delivery. When we were this close with Nick, I was so excited I couldn't sleep. The anticipation of being a father, the excitement of all we'd get to do together, watching the love my bride would have for her son, was something I could hardly wait for. It's a lot different this time around. Our friends the Patterson's are two doors down and just delivered their second child, first boy. I know my buddy Jimmy is having a lot of those same thoughts as he watches his bride and newborn son. It's not that I'm not looking forward to those things. It's just that I want them to happen. I know there are lots of people, like us, who have struggled to have children. I know it may seem selfish of me to think the way I do, but I want those things with ALL of my boys. Not just Nick, David, and Samuel, but Joshua too. It's so much different this time. I have a hard time being excited. 

A few days ago I realized something that may seem pretty obvious. I'm stressed. I don't know why it took me so long to realize what should be so obvious. But I finally got to the root of why I'm stressed; I'm terrified of what the morning brings. It's not even so much the probable outcome that scares me. It's the unknown. Not knowing is the scariest part and I know it's my own desire for control that drives the fear. Sure I'm sad and if he does pass away I'll be a wreck. But deep down, I know the unknown is what is eating me up. 

On a different note, having Katy on bed rest this last month and in the hospital this last week has opened my eyes to a lot. First, I don't know how single parents do it. Working full time and coming home to a second full time job is exhausting! How they have time for anyone other than their kids is beyond me. It also made me appreciate how fortunate we are to be able to have Katy be a stay-at-home mom. The little things she takes care of throughout the days of the week made my life so unknowingly easy. Having to work and then come home during the week and on the weekend just to do those little things has been enough to almost drive me insane. Aside from the obvious reasons my love for my bride has gone up during this pregnancy, realizing all she does for our family without complaint raised the bar even higher. 

When people take care of you, it usually makes you happy. But when people take care of the people you love, it warms your soul. Every time I came in to the hospital to visit Katy and saw a new note or package I was elated. Whenever she told me someone had stopped by to visit or I walked in on a prayer time with friends, I was comforted. There's a sense of guilt you get when your spouse is laid up in a hospital and you aren't with them 24/7. So to know others were caring for her when I wasn't, was awesome. Thank you to everyone who came, sent a card, made a call or text, mailed a care package, or just prayed for us during this time. Your love was overwhelming! And if you want to come visit us while we're here the next few days, please do, just not after 9 as we will be passed out!

Our God is a god of truth. He makes promises and keeps them sustaining the trust in our relationship with Him. When you lose that trust, a relationship is broken. I know there are so many people who don't trust God for any number of reasons, but it seems as if many of them are self-imposed promises thrust on Him that He never made. If we look at the promises of scripture, He hasn't broken one. Sure some haven't been fulfilled yet (Christ coming back) and others took forms that were unexpected but ended up being better (Christ coming to overthrow a spiritual enemy not a political one), but He always keeps His promises. We've known a few friends over the years who have sadly lost children either through miscarriages or complications post-partem. These friends have all said that their babies were in a better place and they knew in their hearts they'd see them again. Some of these friends are Christians, some not. Both are right in where their children are now. The neat thing for us is, that if Joshua dies, we truly know where he will be, that we'll see him again, and he'll immediately be in the presence of Christ. We know this, not because it feels or seems right, but because of our God who cannot lie telling us so in His Holy Word. There's an overwhelming peace that comes with that kind of assurance and guarantee, and it's one that passes all understanding. 

Tonight on the way home from AWANNA, Nick said that Joshua was probably going to die. My mom began explaining to him how that might happen and we would be sad if it did, but we were praying it didn't. He calmly looked at her and said, "Why would we be sad? Joshua will be in heaven with Jesus." Out of the mouths of babes.